Navigating an NDIS planning conversation or plan review can feel like a mountain to climb. As parents walking this path, between coordinating appointments, keeping up with daily routines, and constantly holding space for our children, it is so easy to forget just how much energy and love goes into our caregiving roles every single day.

While it isn't mandatory, putting together a Carer Impact Statement is one of the most powerful tools we have to advocate for our families. It paints an honest, compassionate picture of our day-to-day lives so the NDIA can offer a funding package that truly holds our children in their strengths while supporting us to keep going.

Here is how we can approach writing a Carer Impact Statement together - written from one parent to another.

Navigating the NDIS space can sometimes feel like trying to learn a whole new language while holding space for your child's daily needs. As parents of neurodiverse children and neuroaffirming practitioners, we know that advocacy starts with understanding. When you know your child's fundamental rights - and your rights as their support system - you feel far more empowered to ensure they receive safe, respectful, and genuinely supportive care.

Here is a guide to what your rights mean in the NDIS landscape and how they protect your child every single day.

Below are videos from some of the experts in the field, who shape the way Waves provides positive behaviour support.

Advice From a Practitioner With Lived Experience